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Privacy Policy

How we collect, use, and protect your personal information.

Last Modified: March 16, 2025

At NeuroQure, Inc. ("Company," "we," "us" or "our") we take your privacy and the security of your information very seriously. This Privacy Policy ("Policy") is provided for this website, neuroqure.com and any other websites that we link to this Policy, and corresponding services provided on or in connection with the Site, including links to the provider portal and patient portal (collectively, the "Site" or "Sites") and functionality we may choose to offer through the Site (collectively the "Services").

This Policy is incorporated into, and is part of, our Terms of Use available at neuroqure.com and any Supplemental Terms of Use, which govern your access to and your use of our Services. If you have any questions regarding this Policy please contact us at info@neuroqure.com.

The Policy describes the types of information we gather from people visiting our Site and from individual users ("you" or "users") interacting with our Site and Services and how we use, transfer, and secure such information. By accessing our Services, you agree to be bound by this Policy. This Policy does not govern information we receive from third parties, unless specifically stated. If you do not agree to the terms of this Policy, please do not use the Services. Each time you use any Services, the current version of this Policy will apply. Accordingly, when you use any Services, you should check the date of this Policy (which appears at the top) and review any changes since you last reviewed the Policy.

Information We Collect

We may collect two types of information from users of our Services: "Personal Information," which is information that can be used to identify you (such as name, email address, etc.), and "Aggregate Information," which is information that cannot be used to identify you (such as frequency of visits to the Site, browser type, etc.)

Personal Information Collected

Information you provide.

We collect Personal Information that you voluntarily provide to us when you use our Services. For example, you may provide us with:

  • Contact Information such as your first name, last name, physical address, phone number, email address and other Personal Information.
  • Date of Birth
  • Payment Information
  • Answers to survey questions

Account information.

If you create an account in the Services, we collect the Personal Information described above, as well as any other information and Personal Information that you provide to us through your account.

Provider account.

If you create a provider account in the Services, we collect the Personal Information described above, as well as additional information about your practice.

This Policy does not apply to information that is protected health information (“PHI”) under the Health Insurance Portability and Accountability Act (“HIPAA”). For information regarding how we use your PHI, please see the applicable healthcare provider's notice of privacy practices separately provided to you in connection with the Services. For more information about the privacy of PHI, please contact info@neuroqure.com.

For details about our collection and use of “Consumer Health Data” (as that term is defined under applicable law), please see our Consumer Health Data Privacy Policy at neuroqure.com.

Collection of Personal Information by Third Parties

Some links within our Services may redirect you to third party websites that we do not operate. The privacy practices of these websites or services will be governed by their own policies. We make no representation or warranty as to the privacy policies of any third parties, including the providers of third-party applications.

Aggregate Information Collected

Aggregate Information is information that does not identify you. Aggregate Information may be collected when you use our Services, independent of any information you voluntarily enter. Additionally, we may use one or more processes to de-identify information that contains PHI, Consumer Health Data, or Personal Information, such that only Aggregate Information remains. We may collect, use, store, and transfer Aggregate Information without restriction, including for use in research and development and product development.

For example, when you use our Services, some information is automatically collected. Such information could include your operating system, your location, the results of your test or a website from which you linked to us ("referring page"), the name of the website you choose to visit immediately after ours (called the "exit page"), information about other websites you have recently visited, browser (software used to browse the internet) type and language, device identifier numbers, your site activity, and the time and date of your visit. Although we do our best to honor the privacy preferences of our visitors, we are not able to respond to Do Not Track signals from your browser at this time.

Use of "Cookies"

Cookies are alphanumeric identifiers that we transfer to your computer’s hard drive and smartphone through your web browser and our Services to help us identify you and enhance your experience. You have choices with respect to cookies. By modifying your browser preferences, you have the choice to accept all cookies, to be notified when a cookie is set, or to reject all cookies. If you choose to reject all cookies you may be unable to use part or all of our Services that require registration in order to participate. You can learn more about cookies and how they work at www.allaboutcookies.org. You can always disable cookies through your browser or smartphone settings. Doing so, however, may disable certain features on our Services. You can opt-out from third party cookies that are used for advertising purposes on the NAI website at http://www.networkadvertising.org/managing/opt_out.asp.

Analytics

We may use third parties, such as Google Analytics or other analytics providers, to analyze traffic to our Site or Services. Google Analytics does not create individual profiles for visitors and only collects aggregate data. To disable Google Analytics for example, please download the browser add-on for the deactivation of Google Analytics provided by Google at http://tools.google.com/dlpage/gaoptout?hl=en. To learn more about privacy and Google Analytics, please consult the Google Analytics overview provided by Google athttp://www.google.com/intl/en/analytics/privacyoverview.html. You may find additional information about Google Analytics athttp://www.google.com/policies/privacy/partners/. You have the option to opt out of Google's use of cookies by changing your settings through Google Ad Settings via the Google advertising opt-out page athttp://www.google.com/policies/technologies/ads/.

We may also use cookies, pixels, beacons, or other web tracking technologies to track the amount of time spent on our Site and Services or social media, and to gather insight about how you interact with features of our Services, such as whether you watch videos or other media on our Sites. We may work with a third party to collect and process this information for us, based on our instructions and in compliance with this Policy.

Interest-Based Advertising

We may also participate in interest-based advertising using similar technology. This means that you may see advertising on our Sites tailored to your interests, or you may see advertising for Company and its properties on other websites based on your browsing behavior across websites. Some websites where we may advertise belong to ad networks that use your web browsing history to choose which ads to display on their network websites; these ads include advertising for Company and its Sites. Other websites where you see our ads, such as Facebook, may use interest preferences that you have chosen on those sites, to choose which ads to display to you. Some internet browsers, websites such as Facebook and mobile devices offer opt-outs for interest-based advertising. Please refer to the website that you are visiting, your browser and/or your device settings for additional information.

You can opt-out of receiving interest-based ads from third parties who are members of the Network Advertising Initiative (NAI) or who follow the Digital Advertising Alliance's Self-Regulatory Principles for Online Behavioral Advertising by visiting the opt-out pages on the NAI website ( http://www.networkadvertising.org/choices/) and DAA website ( http://www.aboutads.info/choices/).

Use of Personal Information

We use the Personal Information you provide to us as necessary to provide the Services, operate our business, and provide information that you request from us. This also includes the following uses and purposes:

  • Create and administer your account.
  • Provide, operate, improve, maintain, and protect our Services.
  • Provide you with technical and other support.
  • Facilitate actions that you take in the Services.
  • Send you Services and company updates, marketing communication, and other information about our company, our Services, and products and services of third parties, that we think you may be interested in.
  • Conduct research and analysis, and monitor and analyze trends and usage.
  • To request feedback.
  • Enhance or improve user experience, our business, and our Services, including the safety and security thereof.
  • Personalize our Services to you.
  • Communicate with you and respond to inquiries.
  • Operate our business and perform any other function that we believe is necessary to protect the security or proper functioning of our Services.
  • As necessary to comply with any applicable law, regulation, subpoena, legal process, or governmental request.
  • Enforce contracts and applicable Terms of Use, including investigation of potential violations thereof.
  • Detect, prevent, or otherwise address fraud, security or technical issues.
  • Protect against harm to the rights, property or safety of NeuroQure, our Services, third-parties, or the public as required or permitted by law.

Please note that this may involve transferring your Personal Information to a third party. Where you have opted in to marketing communications, including by signing up for marketing emails, we may also use Personal Information to market new products and services to you. Please note that we will transfer Personal Information to third parties as described within the Section titled, “Sharing of Personal Information with Third Parties.”

Sharing of Personal Information with Third Parties

We may transfer Personal Information to third parties for the purpose of providing the Services. We may disclose Personal Information to our affiliates or third-party service providers to provide you with the Services. For example, we may transfer your Personal Information to third party service providers such as software providers to (i) assist with providing the Services; (ii) communicate with you about current or future offerings, including sending you marketing communications where you have opted in these communications. The categories of third parties we may share personal information with may include laboratories, clinicians, order fulfillment services providers, payment processors, performance monitoring tool, account registration and authentication services, data analytics services. These third-party service providers are not authorized to retain, share, store or use the Personal Information for any purposes other than to provide the services they have been hired to provide, which may include assisting us with alerting you to future product offerings where you have opted in to receive such communications.

We may also elect to transfer your Personal Information to third parties under special circumstances to: (i) to comply with a legal requirement, judicial proceeding, court order, or legal process served on us; (ii) to investigate a possible crime, such as fraud or identity theft; (iii) in connection with the sale, purchase, merger, reorganization, liquidation or dissolution of Company, including the evaluation thereof; (iv) when we believe it is necessary to protect the rights, property, or safety of Company or other persons, or (v) as otherwise required or permitted by law, including any contractual obligations of Company.

Corrections/Information Removal/Opt-Out

You can request that any Personal Information stored by us to be deleted at any time by contacting us at info@neuroqure.com. We may require you to provide certain information to verify that it is you making the request. However, we will not delete information that we are required to retain in order to comply with applicable laws and regulations, our own data retention policies, or to complete the offering of any active portion of the Services.

If you no longer wish to receive our newsletter or promotional communications, you may opt-out of receiving them by following the instructions included in each communication.

Children

We do not knowingly collect Personal Information from children under the age of 13 in connection with the Services without requiring parental or guardian consent. If we become aware that a user under the age of 13 has provided Personal Information to us, we will immediately remove the individual’s Personal Information.

How We Protect Your Information

We take the security of your Personal Information very seriously. We use reasonable administrative, physical, and technical safeguards to secure the Personal Information you share with us, and additional protections where required by applicable law. We also take certain measures to enhance the security of our Services, however, since the Internet is not a 100% secure environment, we cannot guarantee, ensure, or warrant the security of any information, including Personal Information, you transmit to us. There is no guarantee that information or Personal Information may not be accessed, disclosed, altered, or destroyed by breach of any of our physical, technical, or managerial safeguards. It is your responsibility to protect the security of your login information.

Will We Change This Privacy Policy?

Each time you use our Services the current version of the Policy will apply. When you use our Services, you should check the date of this Policy (which appears at the top of the Policy) and review any changes since the last version. Our business changes frequently and this Policy is subject to change from time to time. Unless stated otherwise, our current Policy applies to all information that we have about you.

Visitors That Reside Outside the United States

We provide our Services for the purpose of serving interested parties within the United States, and our Services are not intended for, nor directed to, anyone residing outside the United States.

How Do You Contact Us?

To contact us with your questions or comments regarding this Policy or the information collection and dissemination practices of this Site, please contact us:

info@neuroqure.com
32932 Pacific Coast Hwy #14-123
Dana Point, CA 92629